Trenaunay: 22 results found.
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Sturge-Weber Foundation (Canada) Inc - support, education, information on Sturge-Weber Syndrome, Klippel-Trenaunay Weber Syndrome, port-wine stains
Provides information, support, education for Sturge-Weber Syndrome, Klippel-Trenaunay Weber Syndrome,
port-wine stains sufferers. Offers education to general public, medical profession, government agencies, and funds research on these conditions.
National non-profit organization in Lower Mainland – Vancouver area, British Columbia, Canada
Sturge-weber.ca ~
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Lymphovenous Canada
Links people in Canada with dysfunctioning lymphatic systems with health care professionals and support groups in their communities and around the world. Through this site we will keep you informed of some of the latest developments in scientific research and treatment in this area.
Lymphovenous-canada.ca ~
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Jachin Jordan 2010 Golf Outing Benefitting The Sturge-Weber Foundation
jakejordan.org is a resource for information on Jachin Jordan, and annual golf outing benefiting The Sturge-Weber Foundation. Jachin, who lives in Madison, WI, was born in June of 2007 with Sturge-Weber syndrome as well as Klippel-Truenany. He came into this world with a port-wine stain birthmark covering 70% of his body, including his entire face. At two days he was diagnosed with glaucoma in both eyes and at 10 weeks he experienced his first of many seizures due to the birthmark being in the right hemisphere of his brain.
Jakejordan.org ~
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Klippel Trenaunay Syndrome
klippeltrenaunaysyndrome counter syndrome trenaunay klippel map contact site privacy info tissue limb hypertrophy bone soft affected hemangiomas veins malformation cases patients capillary growth symptoms form surgical used hemangioma frequently limbs larger laser stain varicose common stains wine port length portwine
Klippeltrenaunaysyndrome.com ~
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