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Jachin Jordan 2010 Golf Outing Benefitting The Sturge-Weber Foundation
jakejordan.org is a resource for information on Jachin Jordan, and annual golf outing benefiting The Sturge-Weber Foundation. Jachin, who lives in Madison, WI, was born in June of 2007 with Sturge-Weber syndrome as well as Klippel-Truenany. He came into this world with a port-wine stain birthmark covering 70% of his body, including his entire face. At two days he was diagnosed with glaucoma in both eyes and at 10 weeks he experienced his first of many seizures due to the birthmark being in the right hemisphere of his brain.
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