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Katherine Eban
KATHERINE EBAN, an award-winning investigative reporter, writes for Fortune, Self, Vanity Fair and other national magazines. She has worked at Conde Nast Portfolio, the New York Times, New York, the New York Observer, and ABC News. Her work has been featured on national news programs including 60 Minutes, 20/20, Nightline and NPR.
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EBAN: Epidermolysis Bullosa ACTION Network
The Epidermolysis Bullosa (“EB”) Action Network is a nonprofit charitable organization committed to accomplishing the following objectives: To serve and revitalize the EB community with integrity and determination;
To take action wherever needed to modify public policies that impact the lives of EB sufferers;
To work as an advocate for EB sufferers and affected families to improve their quality of life and help ease their financial burdens;
To facilitate the exchange of reliable information and foster cooperation with other EB organizations, the medical community, the educators, and the government;
To develop programs in response to issues of common concern, or of common interest;
To promote and cultivate respectful discussion, tolerance and understanding, thereby functioning as an agent to propagate awareness about the devastating disease we live with; and
To provide a platform for communication, to stimulate and improve conditions that will benefit individuals in need and the EB community as a whole.
These are the goals we have set, and we are dedicated to this purpose.
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Eban Software nasce nel 2005 da una lunga esperienza nel settore della progettazione e realizzazione di software gestionali realizzati su misura per...
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