The Artemissia Foundation - Miracles Do Happen

Description: The Artemissia Foundation is being being born as a tribute to our daughter Artemissia Avalon Alexiou. It will be Artemissia's Legacy. Artemissia suffered from Sandhoff Disease, on of the rare genetic genetic disorders that are becoming more prevalent. Artemissia's will to survive unconditional love, were that strong that everyone around were totally inspired. We have learnt so much from Artemissia that we can only try to share and help others. This is a small beginning of a wonderful vision.

Keywords: Rare disease, Sandhoff, Tay-Sachs, Leukodystrophy, Lysosomal, Help, Kids, Need, Carers, Caring, Respite, Clinical Trials, Family Support, Information, Research, Torontop Hospital For Sick Kids, Australia, Pyrimethamine, Gene Therapy, Pharmacological Chaperone, Donate, Funding, Philanthropy, Charity, Give, Share, Byron Bay, Genetic Testing, Home Care, Government Support Agencies.

Tags: theartemissiafoundation, artemissia, foundation, miracles, happen, rare, patient, diseases, com, disease, fibrosis, fibrose, wordpress, kreation, theme, title, designed, web, support, research, mit, cística, zystische, cistica, mucoviscidose, atteint, cystic, patiente, quística, affetto, paziente, paciente, fibrosi, home, public, australia, therapy, gene, new, children,

Theartemissiafoundation.org

Content Revalency: Title: 66.67%   Description: 11.86%   Keywords: 30.23%  |  Document size: 12,614 bytes
More info: Whois - Trace Route - RBL Check